On the 5th and 6th of March, Barcelona hosted XI Annual Conference of Biomedical Research Technology Platforms. Different advances in Innovative Medicines, Nanomedicine, Health Technology and Biotechnology Markets were presented. The focus was on the use of these advances and their necessary coexistence with the legal framework of clinical research and data protection.
Synapse CEO, Carlos Díaz participated in a debate on how to share data in biomedical research. The session was focused on the experience acquired in the IMI Big Data for Better Outcomes (BD4BO) initiative including representatives from the ROADMAP and HARMONY (both managed by Synapse), BigData@Heart and DO-IT projects.
Carlos Díaz presented the ROADMAP project, that provides the foundation for an integrated data environment and framework for real-world evidence (RWE) in Alzheimer’s disease, highlighting its main pillars and challenges. It was a great pleasure to present ROADMAP at the event alongside most other projects in the BD4BO programme – who all counted on Spanish representation. Good and interesting session allowing us to build bridges with our BD4BO colleagues, and understand better the new legal framework in Europe in terms of data protection.
To watch the presentation click here.
ROADMAP aims to create the conditions for an open collaboration that yields consensual and efficient uses of RWE for the benefit of Alzheimer’s Disease patients and their caregivers. This will be achieved by using pilot studies to assess methods of data integration for patient outcomes that are useful for disease modelling; and developing tools and methods for stakeholder engagement. ROADMAP will set new standards for the collation and evaluation of RWE in Alzheimer’s Disease.
HARMONY aims at capturing, integrating, analysing, and harmonising anonymous patient data from high-quality multidisciplinary sources to unlock valuable knowledge on haematological diseases for a better prognosis and quicker life-saving decisions for patients.